Wednesday, October 29, 2025

From Missing Words in the Village to Bat-sh*t Crazy Ideas

This post explores the quiet unraveling of verbal fluency in aging—how the right word can hover just out of reach, even when the mind is sharp and the stories are intact. It reflects on the embarrassment of word-search moments, the resilience of written expression, and the legacy of objects that speak when words falter. From a dinner-table stumble to a toy camera turned memory keeper, it’s a meditation on communication, dignity, and the joy of documenting a life in dots, notes, and snapshots.   AI….

I hate admitting this, but I’m losing my verbal communication skills. I word-search way too often—knowing what I want to say but not being able to get the right word to roll off my tongue. For example, my oldest niece and her husband took me out to dinner recently and when it came time to order I couldn’t tell the waitress I wanted a quesadilla. We’d just discussed our choices before she came over to our table, so I ended up pointing to my niece and saying, “She knows what I want.” It was embarrassing.

Google says, “Word search issues in seniors can stem from normal aging, stress, fatigue, or anxiety, and neurological conditions like dementia, stroke, or traumatic brain injury. Other causes include certain medications, hearing loss, and vitamin deficiencies.” If mine is from normal aging then I’m, as they say, screwed because a reliable time machine hasn’t been built yet. If it’s caused by my chronic fatigue from getting up seven to ten times a night to pee, I’m also screwed. I’ve tried two medications for nocturia urination and they have not worked. The doctor says there are a dozen others I can try, but many come with side effects, and the trial-and-error period to find the right one is long and could be painful in parts I shall not mention.  

Sometimes I listen intently to my fellow residents here in the independent living building at my CCC to see if others my age word-search as much as I do. Many of us do it—some far more often than others. The phrase, “It takes a village” is a common rejoinder after a table full of us seniors has helped someone come up with a word that they can’t say. It’s slightly less embarrassing when I’m with peers, but when I’m with younger people, it’s hard not to be embarrassed by a word-search episode. At what point does embarrassment turn into depression—and we just quit trying to communicate because we fear what may or may not come out of our mouths? I’m already to the point where I don’t contribute to some conversations because I’m having a bad “speech day.”

 Word-search issues also aren’t a true reflection of what’s going on inside my brain’s communication center. My writing skills, for example, have gotten better as I age. It’s crossed my mind that one day I could claim I’d had a stroke that left me with aphasia and unable to talk. Then I could carry around a tablet to type my side of conversations. But having watched how people treated my husband in the twelve and a half years after his massive stroke and loss of all communications skills, I know the default impression a non-verbal person leaves is one of a lowered IQ. Don certainly didn’t lose any IQ points with his stroke. Most people were kind—even went out of their way to show compassion—but I’m sure he felt the misjudging just as I could see it. (Note: I'm not saying all people who become non-verbal keep all their IQ points. I'm just saying it's not true in all cases.)  

For me, when my word-search issues get worse, it’ll be like being back in grade school—hearing my mom, in a fit of extreme frustration, call me “stupid,” and teachers labeling me "slow." I had an undiagnosed, mild case of dyslexia back when learning disabilities weren’t part of the national vocabulary. I’ve long since forgiven my mom, but sometimes those childhood scars itch, and I have to resist scratching them until they’re raw. I suppose that’s human nature. No one gets to be in their 70s and 80s without a few scars that itch from time to time.

Time to switch topics. I bought myself a camera. I swore I wouldn’t buy anything else that needs charging—but here I am, adding one more device to my charging station. Yeah, I know, I have a perfectly good camera on my phone and a decent 35mm in the closet. But this camera is special. It’s like the old Polaroids—snap a photo and it prints in seconds. It’s a cheap camera made for kids and it only prints in black and white but it won’t matter for the project I bought it for. (Hint: Now that I’ve used it, I do wish I’d upgraded to a color version.) Both, though, will print photos off your photo using an app and blue tooth. It’s hard to tell if the poor quality of the prints is because I can’t hold my hand steady long enough to click the shutter, or if it’s just the nature of what’s advertised as a child’s toy. Either way, I’m having fun with it. 

What’s my project? Decades ago, I went to an estate sale where most of the items had notes attached that gave the history of each piece. The daughter of the man whose estate was being sold said her 80-something father became obsessed with documenting his belongings so his kids would know what was important to keep. Going through that house was like walking down Memory Lane with a stranger who turned into a friend after reading all the notes. I bought the first pair of long pants the man had worn as a child in 1902—a beautifully tailored, tiny wool pair of knickers. I left his note in the pocket, along with one of my own, when I sold them on eBay in 2020. The woman who received them was thrilled with the notes, and said when she was ready to part with them, she’d add her own. If I were King, that’s what would happen to all the interesting objects in the world: they’d come with pedigrees.

I’ve never forgotten how fun that estate sale was and the older I get, the more tempted I’ve been to write notes for all my possessions. Enter the camera. Instead of writing and hanging tags on every object in my apartment—which even I would find reason enough to think I’d gone bat-shit crazy—I got the bright idea to take tiny photos with my new toy camera and stick them in a blank-paged book. The photos have peel-and-stick backs which makes them extremely easy to tear from the camera and apply. I’m writing next to the photos, but my plan is to get a sheet of color dots to code them as well.

I’ll color-code some items to go with me to Assisted Living or Memory Care—in case I can’t talk by then. I can’t expect my nieces to know what things I want to stare at in my final days and what things I don’t want to risk getting stolen by other residents or staff. (It happens. Things disappeared from both my dad’s Hospice Room and my brother’s Memory Care rooms.)

Twenty-five of those colored dots will go on items I want included in a mock auction—with just my immediate family present, using Play Money. That way, they can decide for themselves what they might want, instead of me earmarking things for certain people. And if no one wants any of it and one of my great-nieces or nephews ends up winning all the bids and reselling stuff on e-Bay? So be it. E-Bay puts collectibles into the hands of people how appreciate what they are buying. I heard about a family who did this, and when I told my youngest niece about the plan, she thought it would be lots of fun. 

There you have it—another rambling Wednesday post. See you next week. © 

19 comments:

  1. I'm starting to sometimes have trouble finding a word too. I find it interesting that it happens to those of us who write a lot.

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    1. I don't think writing a lot insulates us from word-search issues. Anymore than the inability to write---agraphia---goes hand-in-hand with it. They are two different issues that can occur together or apart. My husband had aphasia, agraphia and apraxia. His language center of the brain got hit really hard and I watched speech therapists drill him for years---me behind a one-way mirror while I sat with students and a professor. The most important things I learned is to never give up because the act of trying can heal the neurons in the brain and to never lose your sense of humor. Humor gets us through a lot of disabilities. I still can joke about word-searching but I fear that embarrassment will one day make me quit trying.

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  2. Don't know if your camera has this feature, but my Android phone has voice capability to take pictures. 'Shoot' will do it, great when trying zoom features on moving animals or birds. Great for one-handed persons like me.

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    1. Wow, that's a great feature! I'll check with my android phone. Back when my husband had his stroke I tried to find a camera he could operate one handed because he loved photography. I'm glad you found a work-around. It never occurred to me that my shakiness could be solved with voice activated cell phone camera. I know the new camera doesn't have it because it's really just a toy with no features other than the printer.

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  3. At 78, I noticed WordSearch happening more often, but I see it in some of my friends as well. I think it’s quite common. We use the word "Thingy" a lot. Mary

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    1. Don't know what the "word thingy" is but I'm glad it works for you and your peers. Whether or not it gets worse, I think, depends on what is causing it.

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    2. I think she means she says the word "thingy" when she can't come up with the right word. You know, "What's that thingy that goes on your head? Oh, yeah, a hat!" I had to laugh once when my mother was talking about my husband's brother and she called him "You know... what's his face."

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    3. I've never been good with names and you made me laugh with the "what's his face" because I used to say it a lot when I was younger.

      Okay, now the "thingy" makes sense. LOL

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  4. I struggle at times with getting my words out but usually if I sit back and think about it the words come. My friends and I laugh at ourselves about this as we all deal with it from time to time. It’s nice knowing we are not alone in this frustrating ailment. I admire you for all you do to preserve the past for your family and I am sure some of them will greatly appreciate it. Thanks for all you have done in our families history and hopefully generations to come will realize what a gift it is. JJ

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    1. I figure there is one person in every generation who takes a keen interest in family history and that person has a good chance of finding the research I've done and will catch it up from where I left off. With our common branch of the family I've piggy backed on the research of our great-great aunts in East Tawas which is how I was able to get the tree back to the Revolutionary War and before. I only wish the internet would have been around when I was doing the most work. So much is online now that wasn't back then.

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  5. I'm sorry to read that you are sometimes struggling to find words when speaking, Jean. (Selfishly, I am happy that your writing remains vibrant.) The peeing in the middle of the night thing...yeah, not as many times as you but I do have to get up most nights at least once even if I limit my fluids after dinner, etc. Strangely, I just got back from visiting my sister on the mainland and was able to sleep through the night at my motel, no problem. Methinks I probably wasn't drinking enough during the day as I was certainly not in my normal routine, especially once my sister ended up in the hospital....Anywho, back home now and yeah, getting up in the night again. Aging is not for the weak but still beats the alternative.

    Deb

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    1. Getting up once or twice a night is considered normal. I never drink anything after seven. One thing that helps with nighttime urination---they say---is in the middle of the afternoon lay down with your feet above your head for an hour, but I can't manage to find the time for that. Supposedly water collects in our legs during the day and that's to prevent that.

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  6. Another person who has to do a word search every now and again. My husband is worse, but we tend to supply the other one with the right word.
    So I woke up this morning to an email from a local friend saying her husband had a stroke yesterday afternoon and is in the ICU. He also has had NPH (what Billy Joel has) for the last three years. Other than the obvious I'm so sorry and if you need anything, I'm at a loss. Any suggestions on what a friend group can do, if anything? Was there anything that friends did that you appreciated? I do understand everyone is different on what kind of support they'd like, if any.

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    1. When my husband was in ICU my sister-in-law and brother-in-law brought me picnic lunches and made sure I ate. Had another friend who offered to do my laundry but I didn't take her up on it. Someone else let my dog out during the day when I couldn't. I've seen suggestions that when you are supporting someone whose spouse is in the early days of a medical emergency is to not say "let me know if I can do anything" but rather say, "Can I do such-and-such for you?" Anything like make calls, pet sitting, picking up a few groceries, or bringing fresh clothing in---whatever you could do that they might need.

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  7. Bit by bit we lose a little dignity. As long as I can figure out a workaround, I'll deal with it. Trospium Chloride has really worked for me and my big, beautiful bladder. I try to drink plenty during the day (have had to add one glass of water BEFORE my coffee, as I sip that coffee for an hour while I read). Then I stop drinking at 8pm. Sip a glass of red wine. Now I'm getting up just once.

    Have you thought about a tripod for your cell phone and/or your new camera? Lots of choices.

    Our friend Judy took my measley genealogy notes and fine tuned it. Most of my research was online and then a few details from relatives. I also found a distant relative who had gone to Scotland and traced the Lockhart family ... all the way back to 1600's. I have a printed copy and an electronic copy ... thinking I would add photos as far back as I can go.

    Thank you for blogging!

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    1. I created a blog for my family history photos, documents and oral history stories for my dad's side of the family. It's quite packed full and people do find it. I also have hard-copies of the same information but I'm pretty sure it will stay online longer than the hard-copies will be around. Both go back to the 1600s as well.

      Trospium Chloride is what I'm on and so far it's not doing anything to cut down of my trips during the night. I think i actually need to drink more water than I'm doing. I've also heard that if you drink a full glass of water at bedtime that helps cut don't on the urges but I haven't tested that one out. Doctor thinks I need to give the Trospium more time as it can take weeks before some people see a difference. I've also managed to get myself overdosed on Metatonin so I'm working on getting that out of my system. Anything over 8 mg is not recommended and I've been doing 15mg. I've switched to sleep patches and mainlining the stuff at a much lower dose, so to speak.

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    2. P.S. I will use a tripod when I start taking some photos for a few things I should sell on e-Bay but for my current project I love the instant printing and there is no way to tripod this little toy camera. It's only feature is an on/off button, a camera button, a bluetooth connect to your phone button and a print button. And a place to plug in a charger.

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  8. I'm so familiar with the lost-word-syndrome. I do have periods when it is better or worse. Being able to find my words feels like a tidal pull. Sometime it feels like the tide is out and the words are somewhere far away.

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    1. I feel like I'm living my life in reverse, where I once built a vocabulary as a child and now I'm losing it. I like your tidal wave analogy.

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