“Not in Assisted Living (Yet): Dispatches from the Edge of Independence!

Welcome to my World---Woman, widow, senior citizen seeking to live out my days with a sense of whimsy as I search for inner peace and friendships. Jeez, that sounds like a profile on a dating app and I have zero interest in them, having lost my soul mate of 42 years. Life was good until it wasn't when my husband had a massive stroke and I spent the next 12 1/2 years as his caregiver. This blog has documented the pain and heartache of loss, my dark humor, my sweetest memories and, yes, even my pity parties and finally, moving past it all. And now I’m ready for a new start, in a new location---a continuum care campus in West Michigan, U.S.A. Some people say I have a quirky sense of humor that shows up from time to time in this blog. Others say I make some keen observations about life and growing older. Stick around, read a while. I'm sure we'll have things in common. Your comments are welcome and encouraged. Jean

Wednesday, March 25, 2026

Armageddon, PAP Machines, and Other Bedtime Stories

 There are seasons in life when the practical and the existential collide in the oddest places—like a hospital sleep lab, a mortality table, or a phone that won’t stop ringing because someone you love remembers the past more clearly than the present. What begins as a simple medical test can open a trapdoor into bigger questions: how we measure a life, how we outlive the people who shaped us, and how memory—our own and others’—keeps tugging us backward even as time keeps pushing us forward. This is a story about breathing, dreaming, aging, and the strange comfort of knowing that even the actuarial “house odds” can’t quite account for the human heart….AI

 

Tomorrow I’m spending the night in the hospital for a sleep study. I flunked the at‑home test—apparently I’m not breathing in the “safe zone.” My sleep doctor said I stop breathing or am breathing very shallow on an average of 64 times an hour. 30 times an hour is considered severe and over 60 times is considered life‑threatening. (And here I though I'd slept exceptionally well the night of the test.) Several times after surgery, anesthesiologists have told me I’m a shallow breather, so I’m not surprised to learn I sleep the same way. I’ll be getting one of the PAP machines—whichever kind the test tomorrow night determines I need. I just hope I can actually sleep in a hospital setting so they can get what they need.

On one hand, I’m looking forward to getting the machine, knowing I’m less likely to die in my sleep. On the other hand, it’s oddly empowering to know that if Armageddon breach our shores—perhaps in retaliation for us electing a president who brought his own version of Armageddon to so many other countries—I could simply refuse to use the machine, pulling my own plug so-to-speak, and cross my fingers I don't wake up. (Can you believe what the U.S. led oil embargo is doing to Cuba? Last I heard Mexico and China were both attempting to deliver ships full of desperately needed food and medical supplies, while our president seems to be waiting to sweep in like a vulture to pick the bones of the died.)

Back on topic: Thinking about sleep inevitably leads me to thinking about dreams. Will the machine affect my dream life? I dream of my husband so often that some mornings I don’t want to get out of bed, even when my bladder is telling me I'd better get up if I know what's good for me. He’s been gone fourteen years, but with his nightly visits it doesn’t feel that long. He was the best friend I ever had—and that includes my best female friend since kindergarten, who has been calling several times a day since her family moved her into memory care a few weeks ago.

She lives in another state, and before her move we touched bases maybe seven or eight times a year. From what I can tell, she has major short‑term memory issues, but her memories of our childhood friendship are still intact. It’s been fun to revisit our past antics with her. But I’ve had to start turning my phone off at night so her early‑morning calls don’t wake me. She’s called as many as seven times in a day, just like we did when we were kids, but now she doesn't remember talking to me earlier in the day. And I’m not sure if she remembers her husband who died a few months ago.

Memory is funny that way—what stays, what slips, what returns in dreams. Many widows (myself included) remember our spouses vividly, but we tend to put on rose‑colored glasses. Disagreements tend fade, and what remains are the character‑revealing moments: the times they stood by us or held us together during the hard times, the times we laughed, traveled, made love or simply sat together in companionable silence. Sunday mornings with newspapers and coffee were always special, even when the dog decided to lay down in the middle of the spread-out paper. At least that’s my experience. When I’m awake, I remind myself Don was nowhere near perfect. Even in my dreams he’s not Princess Charming rescuing me from my daytime woes. More often than not I’m chasing after him and our last dog, begging them not to leave just because I have to get up and pee.

And once you start thinking about the people you’ve lost, it’s hard not to think about how we'll eventually go. We’ve all read stories about spouses who die within hours or days of one another. Recently I saw a story about a man and his dog who died together. Their son found them side by side in a La‑Z‑Boy and thought they were sleeping; he even snapped a photo. Near the end of my dad’s life, I did the same thing—only I thought he was dead, but he wasn’t. He looked so peaceful, but so old, and his memory was unreliable. I remember thinking that if he had to die, doing it in his favorite chair with that peaceful expression was the way to go. When he finally did die in a hospice home the last thing he said was, “Am I there yet? Is this the Pearly Gates?” which made me laugh so hard I couldn’t stop. It was Christmas Eve at midnight and organ music was blasting from his roommate's TV. Aging has a way of turning these unexpected moments into mile markers.

When you get to my age every birthday is a mile marker and you can’t help wondering how and when you’ll start that journey into the Great Unknown. In my case, a young salesgirl once showed me the actuarial projections my continuum‑care facility ran on me before accepting my down payment. She wasn’t supposed to show them to potential residents and she may have lost her job for doing it. I had asked if she was absolutely sure I’d have enough money to live there, and she said, “Oh yes—see this mortality table? It estimates your life expectancy based on age, health and other factors. You’re going to live five years in independent living, two years in assisted living and two months in skilled nursing.”

In October I will have lived here five years, and don’t think that fact doesn’t weigh on me. The computer programs that make those actuarial projections keep the insurance industry thriving. In other words, the House always wins… unless it’s a Trump casino, which he managed to bankrupt along with a dozen other businesses. I just hope he doesn’t do the same with our country.

And now here I am, circling back to that sleep study. I’m wondering if they ordered a new mortality table that factored in a PAP machine, would it change anything? Will it help me beat the House odds? Or am I just grasping at straws? In the end, none of us really knows how long we get — we just keep breathing, dreaming and hoping the House doesn’t call in its chips before we've checked everything off our Bucket Lists. ©

17 comments:

  1. Hello! New commenter here, and I find your writing insightful, poignant, and danged hilarious! I only wish I'd discovered your blog sooner. Good luck with the sleep study.

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  2. Last night a friend and I were talking about the pros and cons of extensive work and expensive hearing aids and how to judge those choices considering our age and medical status. I don't think I want to know what that actuarial table would have to say about me. I was lucky when I did the sleep study -- not "low" enough on the scale for a PAP machine. Whew. I suspect someday. Good luck on yours. (They also have a mouth device that some I know have used. Not sure if that's more pleasant than a PAP or not.)

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    1. I'm so quality-sleep deprived that I'm keyed up to adjusting to the machine, whatever it takes. But I'm a bit claustrophobic so we'll see how it goes.

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  3. I had the overnight sleep study and failed miserably so I got the machine. I struggled with using it and even tried different masks but since I’m claustrophobic it just didn’t work for me. My husband was given a machine last year but with his dementia he just could”t hack it so we both failed. Hopefully you will have good luck and sleep in heavenly peace. JJ

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    1. Me too! My husband had one and didn't have any trouble with it and I have a great-niece who loves hers. I'm hoping I take after them. I don't move much when I sleep so that might help. It's the sound they make the concerns me the most. I had to use hear plugs when Don had his C-PAP.

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  4. Good luck with your sleep study.
    It's nice that you have many happy memories about your life with your husband. I divorced mine so I don't remember many happy times at all - but there must have been some at some point. It's just the unhappy times stand out now when I think back.

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    1. When I was a newly minted widow I really felt for the widows who had bad marriages because in that time frame---say the first year out---everything you see reminds you of something that went on between spouses. Divorce is one life-experience that I'm glad I never went through but I've watched enough people do it that I know it's the best solution in marriages that don't work.

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  5. I so enjoy your posts. I can relate, as a fellow widow and dog mom who's lost beloved pets...and my dreams merge both. My husband's grandmother was found in the morning passed away in her favorite chair, wearing her comfy robe on a Tuesday morning. She had spent the weekend at a seniors casino outing, Monday saw her husband in the nursing home ( 2nd husband still of 25 years as she was a younger widow to husbands bio grampa and remarried). Honestly, we feel she understood he was never going to be able to come home, had a good last weekend and day, and made her own choice to go to sleep and not wake. I miss his grandma...she was so kind to me.

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    1. That's an interesting concept---that a person actually can pick the time they go naturally, (not by suicide). It's suspected enough times by family who find a loved one in a favorite chair that there could be something to it. We can all hope we go peacefully that way.

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    2. My husband's aunt had undergone a heart valve replacement at least once and needed another when she was in her 80's. She was dreading it. On the day she was supposed to go in for it, she was sitting on the edge of the bed and told her husband "I want to die." And fell over backward onto the bed and died. Quite the shock for the family, for sure.

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  6. Jean, I hope all goes well with your testing. Now, here's a true confession. When I first read your title and saw "PAP Machine" my mind went to pap tests (from the gynocologist). I thought, "Great! Now women have to deal with a machine when having the dreaded pap!!" My mind isn't working yet--probably because we watched our little grandkids yesterday and I'm still feeling it. Be well!!

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    1. We have to laugh at ourselves once in awhile. You are not alone in that. I keep wondering if I'm spelling the PAP machine correctly. Now I think I should go actually look it up.

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  7. A beautiful, thoughtful piece, Jean! I can't believe you've been at your "new" place 5 years already. It seems to me like just a couple of years ago you were still in your house, with faithful Levi by your side. Those sleep studies are pure torture, if you ask me. The cartoon at the top of your post says it all!

    Deb

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    1. I know! Time flies by....and everyday I still miss Levi. Your blog helps with that. I'm not looking forward to getting up to pee with all those things attached. They tell me they are hooked to a pole I can take with me, though.

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  8. Such a good Post Jean, lots to unpack and consider. The Actuarial Projections are interesting, if you've lived this long with your shallow Breathing, I wouldn't worry too much about it, perhaps it's been the Magic that has kept you vertical this long, you never know? I intend to Die in my Sleep, so, I refused the Sleep Study, knowing I have definitely concerning Sleep Apnea, I just told the Doc, well, it's my intention to Die Peacefully in my Sleep and just not Wake Up. I can't think of a better way to exit this Realm actually, except mebbe Dying on a Cruise on the way back from Bora Bora. *Winks* I think in Life we start thinking more about our Lasts at the End and earlier in Life it was all more about our Firsts. A Fav Blogger Burt wrote an Excellent Post about that, it was Profound, and so True.

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  9. How can anyone sleep like that in a hospital? Yikes. Good luck if you get some sleep and hopefully by now there are machines that don't make you claustrophobic. Maybe a micro CPAP that fits like oxygen tubes. Maybe they are much quieter now as well. Sweet dreams1

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