There are seasons in life when the practical and the existential collide in the oddest places—like a hospital sleep lab, a mortality table, or a phone that won’t stop ringing because someone you love remembers the past more clearly than the present. What begins as a simple medical test can open a trapdoor into bigger questions: how we measure a life, how we outlive the people who shaped us, and how memory—our own and others’—keeps tugging us backward even as time keeps pushing us forward. This is a story about breathing, dreaming, aging, and the strange comfort of knowing that even the actuarial “house odds” can’t quite account for the human heart….AI
Tomorrow I’m spending the night in the hospital for a sleep study. I flunked the at‑home test—apparently I’m not breathing in the “safe zone.” My sleep doctor said I stop breathing or am breathing very shallow on an average of 64 times an hour. 30 times an hour is considered severe and over 60 times is considered life‑threatening. (And here I though I'd slept exceptionally well the night of the test.) Several times after surgery, anesthesiologists have told me I’m a shallow breather, so I’m not surprised to learn I sleep the same way. I’ll be getting one of the PAP machines—whichever kind the test tomorrow night determines I need. I just hope I can actually sleep in a hospital setting so they can get what they need.
On one hand, I’m looking forward to getting the machine, knowing I’m less likely to die in my sleep. On the other hand, it’s oddly empowering to know that if Armageddon breach our shores—perhaps in retaliation for us electing a president who brought his own version of Armageddon to so many other countries—I could simply refuse to use the machine, pulling my own plug so-to-speak, and cross my fingers I don't wake up. (Can you believe what the U.S. led oil embargo is doing to Cuba? Last I heard Mexico and China were both attempting to deliver ships full of desperately needed food and medical supplies, while our president seems to be waiting to sweep in like a vulture to pick the bones of the died.)
Back on topic: Thinking about sleep inevitably leads me to thinking about dreams. Will the machine affect my dream life? I dream of my husband so often that some mornings I don’t want to get out of bed, even when my bladder is telling me I'd better get up if I know what's good for me. He’s been gone fourteen years, but with his nightly visits it doesn’t feel that long. He was the best friend I ever had—and that includes my best female friend since kindergarten, who has been calling several times a day since her family moved her into memory care a few weeks ago.
She lives in another state, and before her move we touched bases maybe seven or eight times a year. From what I can tell, she has major short‑term memory issues, but her memories of our childhood friendship are still intact. It’s been fun to revisit our past antics with her. But I’ve had to start turning my phone off at night so her early‑morning calls don’t wake me. She’s called as many as seven times in a day, just like we did when we were kids, but now she doesn't remember talking to me earlier in the day. And I’m not sure if she remembers her husband who died a few months ago.
Memory is funny that way—what stays, what slips, what returns in dreams. Many widows (myself included) remember our spouses vividly, but we tend to put on rose‑colored glasses. Disagreements tend fade, and what remains are the character‑revealing moments: the times they stood by us or held us together during the hard times, the times we laughed, traveled, made love or simply sat together in companionable silence. Sunday mornings with newspapers and coffee were always special, even when the dog decided to lay down in the middle of the spread-out paper. At least that’s my experience. When I’m awake, I remind myself Don was nowhere near perfect. Even in my dreams he’s not Princess Charming rescuing me from my daytime woes. More often than not I’m chasing after him and our last dog, begging them not to leave just because I have to get up and pee.
And once you start thinking about the people you’ve lost, it’s hard not to think about how we'll eventually go. We’ve all read stories about spouses who die within hours or days of one another. Recently I saw a story about a man and his dog who died together. Their son found them side by side in a La‑Z‑Boy and thought they were sleeping; he even snapped a photo. Near the end of my dad’s life, I did the same thing—only I thought he was dead, but he wasn’t. He looked so peaceful, but so old, and his memory was unreliable. I remember thinking that if he had to die, doing it in his favorite chair with that peaceful expression was the way to go. When he finally did die in a hospice home the last thing he said was, “Am I there yet? Is this the Pearly Gates?” which made me laugh so hard I couldn’t stop. It was Christmas Eve at midnight and organ music was blasting from his roommate's TV. Aging has a way of turning these unexpected moments into mile markers.
When you get to my age every birthday is a mile marker and you can’t help wondering how and when you’ll start that journey into the Great Unknown. In my case, a young salesgirl once showed me the actuarial projections my continuum‑care facility ran on me before accepting my down payment. She wasn’t supposed to show them to potential residents and she may have lost her job for doing it. I had asked if she was absolutely sure I’d have enough money to live there, and she said, “Oh yes—see this mortality table? It estimates your life expectancy based on age, health and other factors. You’re going to live five years in independent living, two years in assisted living and two months in skilled nursing.”
In October I will have lived here five years, and don’t think that fact doesn’t weigh on me. The computer programs that make those actuarial projections keep the insurance industry thriving. In other words, the House always wins… unless it’s a Trump casino, which he managed to bankrupt along with a dozen other businesses. I just hope he doesn’t do the same with our country.
And now here I am, circling back to that sleep study. I’m wondering if they ordered a new mortality table that factored in a PAP machine, would it change anything? Will it help me beat the House odds? Or am I just grasping at straws? In the end, none of us really knows how long we get — we just keep breathing, dreaming and hoping the House doesn’t call in its chips before we've checked everything off our Bucket Lists. ©

Hello! New commenter here, and I find your writing insightful, poignant, and danged hilarious! I only wish I'd discovered your blog sooner. Good luck with the sleep study.
ReplyDeleteWelcome and thank you for such a wonderful compliment.
DeleteLast night a friend and I were talking about the pros and cons of extensive work and expensive hearing aids and how to judge those choices considering our age and medical status. I don't think I want to know what that actuarial table would have to say about me. I was lucky when I did the sleep study -- not "low" enough on the scale for a PAP machine. Whew. I suspect someday. Good luck on yours. (They also have a mouth device that some I know have used. Not sure if that's more pleasant than a PAP or not.)
ReplyDeleteI'm so quality-sleep deprived that I'm keyed up to adjusting to the machine, whatever it takes. But I'm a bit claustrophobic so we'll see how it goes.
DeleteI had the overnight sleep study and failed miserably so I got the machine. I struggled with using it and even tried different masks but since I’m claustrophobic it just didn’t work for me. My husband was given a machine last year but with his dementia he just could”t hack it so we both failed. Hopefully you will have good luck and sleep in heavenly peace. JJ
ReplyDeleteMe too! My husband had one and didn't have any trouble with it and I have a great-niece who loves hers. I'm hoping I take after them. I don't move much when I sleep so that might help. It's the sound they make the concerns me the most. I had to use hear plugs when Don had his C-PAP.
DeleteMy younger brother has a CPAP and he says they have come a long way from the really noisy ones. So hopefully that's the case for you. :-)
DeleteThat's encouraging! I hated that sound but I hated it even more before Don got the machine and he'd stop breathing.
DeleteGood luck with your sleep study.
ReplyDeleteIt's nice that you have many happy memories about your life with your husband. I divorced mine so I don't remember many happy times at all - but there must have been some at some point. It's just the unhappy times stand out now when I think back.
When I was a newly minted widow I really felt for the widows who had bad marriages because in that time frame---say the first year out---everything you see reminds you of something that went on between spouses. Divorce is one life-experience that I'm glad I never went through but I've watched enough people do it that I know it's the best solution in marriages that don't work.
DeleteI so enjoy your posts. I can relate, as a fellow widow and dog mom who's lost beloved pets...and my dreams merge both. My husband's grandmother was found in the morning passed away in her favorite chair, wearing her comfy robe on a Tuesday morning. She had spent the weekend at a seniors casino outing, Monday saw her husband in the nursing home ( 2nd husband still of 25 years as she was a younger widow to husbands bio grampa and remarried). Honestly, we feel she understood he was never going to be able to come home, had a good last weekend and day, and made her own choice to go to sleep and not wake. I miss his grandma...she was so kind to me.
ReplyDeleteThat's an interesting concept---that a person actually can pick the time they go naturally, (not by suicide). It's suspected enough times by family who find a loved one in a favorite chair that there could be something to it. We can all hope we go peacefully that way.
DeleteMy husband's aunt had undergone a heart valve replacement at least once and needed another when she was in her 80's. She was dreading it. On the day she was supposed to go in for it, she was sitting on the edge of the bed and told her husband "I want to die." And fell over backward onto the bed and died. Quite the shock for the family, for sure.
DeleteWow! I have no words....other than it must have made for an interesting visitation at the funeral home when that story circulated.
DeleteIn some cases, I absolutely believe people can choose when they die. My younger sister died at 33 and was very close to my dad. When he was diagnosed with cancer, he always said she was "going to come and get me." He literally died on the same day at the same time as she did. We were all a little freaked out TBH, but it happened.
DeleteWow! Considering her age I can understand why you were all freaked out.
DeleteJean, I hope all goes well with your testing. Now, here's a true confession. When I first read your title and saw "PAP Machine" my mind went to pap tests (from the gynocologist). I thought, "Great! Now women have to deal with a machine when having the dreaded pap!!" My mind isn't working yet--probably because we watched our little grandkids yesterday and I'm still feeling it. Be well!!
ReplyDeleteWe have to laugh at ourselves once in awhile. You are not alone in that. I keep wondering if I'm spelling the PAP machine correctly. Now I think I should go actually look it up.
DeleteA beautiful, thoughtful piece, Jean! I can't believe you've been at your "new" place 5 years already. It seems to me like just a couple of years ago you were still in your house, with faithful Levi by your side. Those sleep studies are pure torture, if you ask me. The cartoon at the top of your post says it all!
ReplyDeleteDeb
I know! Time flies by....and everyday I still miss Levi. Your blog helps with that. I'm not looking forward to getting up to pee with all those things attached. They tell me they are hooked to a pole I can take with me, though.
DeleteSuch a good Post Jean, lots to unpack and consider. The Actuarial Projections are interesting, if you've lived this long with your shallow Breathing, I wouldn't worry too much about it, perhaps it's been the Magic that has kept you vertical this long, you never know? I intend to Die in my Sleep, so, I refused the Sleep Study, knowing I have definitely concerning Sleep Apnea, I just told the Doc, well, it's my intention to Die Peacefully in my Sleep and just not Wake Up. I can't think of a better way to exit this Realm actually, except mebbe Dying on a Cruise on the way back from Bora Bora. *Winks* I think in Life we start thinking more about our Lasts at the End and earlier in Life it was all more about our Firsts. A Fav Blogger Burt wrote an Excellent Post about that, it was Profound, and so True.
ReplyDeleteYou are not alone in your logic about refusing the sleep test. I hear that a lot around here. But here's the thing they aren't considering is that you might not die and instead have a stroke or a heart attack in your sleep that leaves you and your family with a long-term disability. Lack of quality sleep also contributes to dementia. For me, I'm just tired of not getting a good night's sleep I lay awake for hours even while taking powerful sleep aids which are also not good for seniors because they contribute to dementia.
DeleteI do Hope your Sleep Study goes well then Jean and you get some relief from the Sleep Issues. So much to consider when making Medical Decisions. The Man is Hospitalized again, at his Cardiologists Appt. his Blood Pressure Tanked and they told me to drive him to the ER immediately! Turns out he has Pneumonia now, last Week it was the Heart Attack and Surgery, sometimes Pneumonia sets in after being put under during a procedure so that could be what's going wrong now?
DeleteHe's been through so much and you too as his caregiver /spouse. I'm keeping you both in my thoughts and sending healing energy your way.
DeleteHow can anyone sleep like that in a hospital? Yikes. Good luck if you get some sleep and hopefully by now there are machines that don't make you claustrophobic. Maybe a micro CPAP that fits like oxygen tubes. Maybe they are much quieter now as well. Sweet dreams1
ReplyDeleteI'm going to fight for the micro mask. I read up on them but insurance is the biggest factor---what they cover and can you pay out of pocket for an upgrade. Thanks for the moral support.
DeleteI did that hospital location sleep test (probably in the same place...haha) and it was surprisingly easy to fall asleep. They told me I was on the very low end of needing the machine, but I went home and read about it online and decided I would pass on it for now. I also asked my husband (who is up in the night regularly) to listen to my breathing, etc. He says I sleep without snoring and don't stop breathing, so for now I'm not keen. I hope your test and adjustment go well!
ReplyDeleteMy test is at the hospital in the southwest end of town where a couple of my fellow residents think the witch doctors practice. My home sleep test concluded I don't snore either or so softly the mic didn't pick it up. So many people around me are getting tested.
DeleteI have had a sleep study done a few times in the sleep clinic at the hospital feels odd the first time when they stuck all the leads over my head, thankfully the sleep clinic is in the out patience section.
ReplyDeleteYeah often a person's short term memory is shit but their long term memory is great, mum's memory went that way towards the end of her life
I wish the could find a cure for that. It's really hard on families.
DeleteGood luck with the mask. Sleep is so important. ❤️
ReplyDeleteThanks!
DeleteThe Actuarial Projections are interesting , I didn't know that sort of thing happened, would it mean if the life projection was a long time, would the costs be higher? When i do sleep I hardly move and sleep deeply.
ReplyDeleteIt means the continuum care facilities estimate if your assets and income will outlast your projected life expectancy and if it doesn't they turn you down from buying into to the place. I'm almost sure the life insurance and mortgage companies use them too.
DeleteHey Jean, Long Time! Just checking in to see what's up and how you've been. I no longer keep up or maintain a FB page, and rarely visit here. Anyway, don't how appropriate it is to provide an email address, so will check back here later .
ReplyDeleteNot sure who you are...but if I were you, I would not leave my email address in a public comment box like this because there are internet crawlers that look for them and then you'll get a lot of spam. But since I moderate my comments, meaning I don't have to publish them, you can go ahead and do so and it won't go public. But don't forget to identify how we know each other.
DeleteThere seems to be a lot of people using PAP machines.My doctor and I discussed it briefly but I told her I was not ready to consider it because I would have to relearn how to sleep since I toss and turn so much. The voice in the back of my head keeps telling me I should seriously consider it. I'll be curious to learn more about how it affects/helps you. Surely it won't affect your dreams, will it? That would be sad for me too because I dream so much.
ReplyDeleteI can see why a person who tosses in their sleep would worry it would be hard to adjust to the machine. A question you might ask a sleep doctor is if the tossing is or isn't caused by the lack of getting enough oxygen when you're sleeping. My guess is that with the machine you'd stop tossing and turning. I didn't ask that question because I generally sleep on my back and only turn to my side once or twice a night. Sometimes I get restless legs which I was told last night can be caused by untreated sleep apnea. I slept really well at the sleep lab hooked up the the machine with 21 wires going all over my body---mostly on my head. I fell asleep within five minutes of laying down and that was two hours earlier than I' try to sleep at home. I only woke up once to pee. At home there will only be the mask over my nose and mouth, no other wires. I'm looking forward to getting the machine but it takes two weeks for them to study the data so they can get the right settings for me. I'll do another post on it near the end of April, after I've used it a couple of weeks.
DeleteI hope your sleep study went okay and your sleep and health will improve once you're given a PAP machine. That mortality chart sounds scary and quite honestly it makes me sick to realize they're calculating life like this. I mean, I'm a lot younger than you are (will be 40 in June) and I've been in a care facility for over six years and was in a mental hospital for nearly a decade in my twenties. I know for a fact that with how much support I receive, I cost far more than I could ever offer the world financially even if I died tomorrow. I'm forever grateful to live in a country with government-funded care.
ReplyDeleteI got the results for the sleep lab yesterday. I slept like a baby there even though I was hooked up to 21 wires and a mask over my nose and mouth. I'm getting a BIPAP in two weeks. I'm excited that it's going to make a huge difference in my life. I'm also scheduled for an EGD to get some answers on my silent acid reflux, which can interfere with sleep.
DeleteI wish we had government-funded care here. I have good insurance that covers most stuff but too many others can't say the same. If sounds like you don't take anything given to you for granted and that's huge.