“Not in Assisted Living (Yet): Dispatches from the Edge of Independence!

Welcome to my World---Woman, widow, senior citizen seeking to live out my days with a sense of whimsy as I search for inner peace and friendships. Jeez, that sounds like a profile on a dating app and I have zero interest in them, having lost my soul mate of 42 years. Life was good until it wasn't when my husband had a massive stroke and I spent the next 12 1/2 years as his caregiver. This blog has documented the pain and heartache of loss, my dark humor, my sweetest memories and, yes, even my pity parties and finally, moving past it all. And now I’m ready for a new start, in a new location---a continuum care campus in West Michigan, U.S.A. Some people say I have a quirky sense of humor that shows up from time to time in this blog. Others say I make some keen observations about life and growing older. Stick around, read a while. I'm sure we'll have things in common. Your comments are welcome and encouraged. Jean

Wednesday, May 6, 2026

Relections...What We Tell Ourselves When No One’s Looking

If April felt suspiciously quiet from Jean’s corner of the continuum care campus, that’s because she spent the month living a double life. By day, she was the same woman who shows up for Wii bowling, Mahjong, and medical appointments that require more specialists than a NASCAR pit crew. But by night—and by “night” it means any hour she could barricade herself in her apartment—she was secretly hammering out posts for the A to Z April Bloggers Challenge like an undercover agent with a keyboard instead of a badge. And somewhere along the line she stumbled across a phrase that lodged itself in her brain and refused to leave through out the entire Bloggers Challenge.….AI

It seems like a month of Sundays since I’ve written a regular blog post. Oh wait—it has been that long since I’ve written the kind of essay that's about what’s going on in my life here in the continuum care community. The A to Z Bloggers Challenge was fun and energizing, but it devoured a month when my calendar was already full. And since none of my fellow residents know I keep a blog, I felt like an undercover agent who couldn’t reveal what was really taking up my time or why I was staying in my apartment more than usual. I was the Cheshire Cat of the CCC—smirking my way through April, wishing I could blurt out my secret but knowing I couldn’t. Shouldn’t.

Some of the other things I did during April:

  • I got the results from my overnight-in-the-sleep-lab study, which confirmed that I have Central Sleep Apnea which means my brain is failing to signal the muscles that control breathing at night that it needs to do so. 

  • I kept up with my weekly Wii bowling team and Mahjong group.

  • I had an outpatient surgery to implant a Bravo device  which led to a diagnosis of Barrett’s Esophagus. Another puzzle piece on why I kept waking up. When I lay down, acid reflux crawls up my esophagus and wakes me up. Treatment is easy. Two pills. 

  • I was in the audience—instead of the cast—for the first time at our annual mystery dinner theater. Boohoo.That was hard to explain since our Life Enrichment Director was begging for actors right up to the day before.

  • I finally saw a urogynecologist after waiting five months, even though the original problem of getting up to pee seven to nine times a night has been cut down to three or four times thanks to my handsome, young sleep doctor and being put on estrogen cream. (I'll leave it to your imagination on how to get it where it needs to be.) The urogrynocologist and Dr, Google agrees, it helps with sleep issues. Strange, eh? 

  • I got a BiPAP machine, which puts me to sleep like a baby and—gasp—might be turning me into a morning person but is making my face look like a relief map when I get up. In case you're wondering, a BiPAP differs from a CPAP because it puts air in and takes it back out where the CPAP only puts it in.

  • And I went to book club unprepared because the assigned book couldn’t hold my interest. Watching ants march across my floor would have been more exciting than A Spool of Blue Thread by Anne Tyler.

But I believe in facing the music when I haven’t finished a book—unlike a few others who simply skip the discussion. And I’m glad I went, because the facilitator tossed me a comment that stayed with me all month as I wrote my A to Z posts. I don’t remember what excuse I gave for not finishing the book, but she replied:

We all tell ourselves stories about the stories we tell.”

Her words smacked me right in the place where blog posts are born. I said, “I want to get that embroidered on a pillow,” and she shot back—tongue firmly in cheek—that I couldn’t because she had it copyrighted.

Naturally, I googled the phrase to see whether she made it up or borrowed it. The closest match was Joan Didion’s famous line, “We tell ourselves stories in order to live,” but that’s not quite the same thing. What I did find was an interesting idea about the four stories we tell ourselves: who we are, where we came from, where we’re going, and why things happen the way they do.

And Google completed the concept with:

“The stories we tell ourselves are internal narratives constructed to make sense of experiences, often acting as filters that dictate our reality, self-worth, and behavioral limits. These scripts, often formed by past traumas or habits, can either empower us or create self-limiting beliefs that hinder growth. Recognizing and rewriting these narratives is essential for personal agency and overcoming emotional traps.”

That explanation gets at exactly what the book club facilitator meant. And I used her phrase as a magnifying glass while writing my A to Z posts. With every post I'd ask myself: Was I being totally honest? Was I sugar coating parts to protect myself or someone else? Was I being unfair or too harsh in my assessments of events or people?

And now I’m asking you: Do we tell ourselves stories about our stories so often that we stop recognizing where fact ends and fiction begins?

Maybe it depends on how scarred some of our realities are—whether we invent stories to protect our inner child or to shield an abuser who’s still in our lives. The latter is, of course, one of those emotional traps Google warned about.

I don’t know the answer. But I do know it was pure serendipity that I heard that phrase at book club on the first day of April, and I thought about it with every post I wrote for the challenge.

So yes, we tell ourselves stories about our stories, and sometimes those stories are accurate, and sometimes they’re stitched together with wishful thinking, duct tape, and whatever scraps of memory haven’t wandered off. But if the A to Z Challenge taught me anything, it’s that the act of examining those stories — even briefly — is its own kind of honesty. And if I ever do get that phrase embroidered on a pillow, I’ll make sure it comes with a tag that reads: “Warning: Jean tries to tell the truest version of her stories — or at least the version that makes her look only moderately unhinged." ©

See you Next Wednesday. 

36 comments:

  1. That is a good phrase and I think it is true for everyone.
    I've been checking your blog each day this past week as I got so used to you posting every day! Glad to hear that your various doctors are helping you to solve the issues that have been bothering you. Have a good week and I'll read you next week! ;)

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    1. Thank you for following my blog. It's been a long haul finally getting myself squared around with all the appointments generated by the sleep doctor, but I'm almost done with them. Now it's just follow ups with each specialist later in the summer.

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  2. I'm reminded of a Highwaymen song - Two Stories Wide - with the line: there's your side & my side.

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    1. I don't recall that song! But it sounds like a good premise for one. Thanks for sharing. I'm going to see if I can find it on YouTube.

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    2. The Lyrics to Two Stories Wide written by Willie Nelson

      Come out of the darkness
      Don't hide in the night
      Come out in the sunshine
      And we'll be alright

      Life's too long to worry
      And it's too short to cry
      And it's too deep to measure
      And it's too stories wide

      There's your side and my side
      Which side do you need?
      Both sides make you lonely
      And make your heart bleed

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  3. I've thought for a long time that our memories are the stories we tell ourselves about what happened, and I think this is saying much the same thing. As I've gotten older, some memories have become those stories, and I now can only remember the story, the actual memory is gone. Or at least, that's how it seems to me, but I've had a major brain injury. I KNOW I can't entirely trust my memories because of that, but also, I've read a lot about how unreliable our memories are, and how eyewitness reports really need to be verified. The problem is, we're so positive that our memories are correct, most of us can't imagine that we could be mistaken.

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    1. Oh, I whole heartedly agree. Our memories are all based on our perceptions and which parts of reality we choose to remember and which parts we forget---on purpose or otherwise.

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  4. Especially in the last year and a half, it seems I spend more and more times with my memories, and now I'm thinking: if these are interpretations and perhaps not necessarily showing me what really happened, is there value in going back to the past? More importantly, why do I want to go back to the past? By the way, Two Stories Wide is new to me. It doesn't surprise me that Willie Nelson wrote it. He may be one of the greatest songwriters of all time.

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    1. I was surprise that Willie Nelson wrote it just because I thought I knew all his songs, and he did record it as well as the Highwaymen.

      I don't think of it as wanting to go back to the past but rather it's like taking stock of our accomplishments and failures, to see a virtual timeline of our lives as we edge closer to the end.

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  5. Oh, I loved this post. I also loved both of the quotes. Both important. Now I have to write a post about something you giggled in my mind.

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  6. That is a great turn of phrase. And perfect timing to inform your A to Z.

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    1. I love the serendipity of hearing that phrase when it could serve me well.

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  7. I think Storytelling is an Art Form and thus, we have some Creative Liberties with it in the Telling of it. I try to keep mine accurate, but when retelling the Stories passed down thru Generations, I think they probably do get altered, embellished some, added to, subtracted from, that's just how the spoken Word gets passed along from Human to Human over Time and perspectives. I had wondered how you had explained away so much Blog Time there at the CCC? *Winks* Just about everyone knows I Blog and most don't Read Blogs anyway so few I know in Real Life would ever bother to stop in here. If they did, they might learn more about me than they ever would in Real Life actually. In Real Life I tend to be more Private and discreet about what I'd discuss. In Real Life I'd probably never bring up such Hot Topics like Religion or Politics lest folks lose their Minds and their shit about it. *Winks* If I lived in a CCC I'm pretty sure I wouldn't divulge much personal information tho'... I'm very Guarded around anyone I haven't known and trusted a long time whose earned that trust.

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    1. I agree with you about storytelling being an art form and about the stories passed down through the generations.

      I know I couldn't write about my impressions of what goes on in my life here at the CCC if I had to worry about what others here would think. It's probably a good thing we don't know what goes on in the minds of people we see often. I had a sister-in-law who read a few posts a long time ago who said she thought my writing was too personal and she felt like she was reading my diary.

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  8. One thing I did NOT accomplish in April is that I didn't write a single word in my book. So what, you may ask, am I doing here? Oh, I don't know, because I enjpy it?

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    1. Sometimes we need a break to get our mojo back for doing some of those long term projects like writing a book.

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  9. That was some month! I'm glad the doctor are helping your sleeping. 😊

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    1. I'm doing much better but the number of specialist this generated was mind boggling. Four and they still want me to see a speech therapist but I'm nicking that.

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  10. That's an excellent phrase. I'll have to think about that one. It had to be hard living a double life -- AND dealing with sleep and other issues. I'm glad you have some answers.

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    1. It's been a long ordeal but I'm glad with the results and finding out it's not just one thing preventing me from getting a good night's sleep. It's been two weeks with the BiPAP machine and I still still feels like I'm getting caught up with on my sleep.

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  11. Enjoyed the alphabet blogs and I hear you about finding a clear time to write when the writing is a private thing. And loving the quote about stories. My family was - and in me, is - a story telling family. There was a repertoire of funny or poignant tales about everyone in the family and those stories were retold, embelished, and cherished. A verbal form of hugging was how I saw it as a child when my mother, her three sisters and my grandmother were all capping one another's tales.

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    1. Your family get-togethers must have been fun. I love the idea that family tales are like verbal hugs. My husband's family was like that, always trying to top one another and I'm quite sure a lot of embellishments were involved. Unfortunately with kids always being on their phones that they aren't learning the art of storytelling.

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  12. What a month you have had! I hadn’t considered all that writing time without people around you even knowing you blog. Haha. You would have made a good detective.
    Glad the sleep doctor has been helpful. It’s amazing g how much we see now about the importance of sleep. You truly had a packed calendar!

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    1. The only down side to getting a sleep doctor is you end up looking like an an astronaut at bedtime and your face looks like a relief map when you get up. It takes a good hour before your face gets re-arranged so I still can't pop of of bed and go some where in the mornings. I'm getting a new morning routine though, that includes cleaning the sleep apnea parts and even making my bed every day which I never did before.

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  13. What a terrific Reflections post! I love the image of you as an undercover agent, blogging away in the dead of night. I marvel at what else you were dealing with at the same time. And that phrase has lodged itself firmly in my mind as well. The stories we tell ourselves about ourselves and our stories serve to reinforce our constructed views of ourselves, which is not always a good thing.Just reminding ourselves of this is a tonic.
    I hope you will keep up your undercover activity!

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    1. Thank you. I'm just glad I was able to get through the challenge without missing a day. I know I couldn't have done it if I had had a more challenging topic like yours.

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  14. WOW! You have accomplished amazing feats in your medical life. Which affects EVERYTHING going on in your busy life. I also use Estradiol and I think I'm going to ask for a patch at next week's 6 month check up.

    I didn't read your daily blogs daily, but I think I have caught up now. Was not always able to have a clever comment. I can't wait for more on the life inside the CCC!!!

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    1. The patch would be easier but they say you get more side effects with it and it doesn't help as much with the side walls that need strengthening to withstand the pressure that "area" gets from the bladder.

      I'm am worn out from all the running around to doctors. But that will be slowing down after this week.

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  15. Boy you have been a busy young lady haven't you? I've heard that saying a great many times. So I don't think she made it up since I don't know her. :-)
    Jean the estrogen cream in your ooh haa does help a great deal. It has helped me sleep. Stop the urgency to pee and of course the old sex drive. You'll like it after a month or so or at least I hope so. I am now sleeping about 6 hrs a night. I was only doing 2 hrs before I started this.

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    1. It just sounds so weird to have it prescribed for sleeping but it does seem to work. My cute, young sleep doctor explained that it strengthens the walls inside us so that it doesn't react to pressure in our bladder. But I'm having trouble getting a refill. The pharmacist says there's a nationwide shortage.

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  16. Looks like everything is aligning and you will finally be able to sleep well. I too have struggled with sleep and after seeing a sleep doc it made a world difference.

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    1. It's been a long haul but worth the journey to get to this point in getting a good night's sleep. I still have a couple of follow up appointments with three specialists involved but with nothing but good news to report, those will be a piece of cake.

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  17. This was such an engaging and thoughtful read. I smiled several times at your humor and honesty, especially the image of being the “undercover agent” of assisted living during the A to Z challenge.

    But beneath the humor there is also something much deeper here: the question of how we shape our own stories, and how memory, protection, honesty and self understanding all become intertwined. I found that idea fascinating.

    The sentence from your book club really is remarkable. “We all tell ourselves stories about the stories we tell.” It lingers in the mind long after reading, and I can understand why it stayed with you throughout April.

    I also admire the openness with which you write about health, aging and everyday frustrations without losing your wit or sense of perspective. That balance is not easy to achieve.

    And for what it is worth, your “moderately crazy” version of the truth makes for very compelling reading.

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    1. Wow, thank you. Your check will be in the mail. I wish. I can't pay people for great reviews but I sure to appreciate them.

      I'm glad you connected with the phrase that I 'borrowed' from book club. It really cut to the heart of that internal dialogue we have with ourselves, doesn't it.

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  18. Good post. I do tell stories, but that's what writers do. Ha ha. Sounds like you had a good blogging month.
    J (he/him 👨🏽 or 🧑🏽 they/them) @JLenniDorner ~ Speculative Fiction & Reference Author and Co-host of the April Blogging #AtoZChallenge international blog hop

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