If you've been following my blog you might remember that I've been listening to an audible book by David Brooks titled: How to Know a Person: The Art of Seeing Others Deeply and Being Deeply Seen. I'd love to claim that I'm intellectual enough to have known who David Brooks is before I started this book, but I'm not. All I knew was that Bill Gates has the title on his 'Must Read" summer reading recommendations list and that two of his takeaways from the book are about understanding the power of curiosity and how to acquire empathy building skills. After a little more digging I learned that he's a conservative columnist for the New York Times and that Barack Obama is also a fan of David Brook's writing. That was good enough for me to invest my time and money into the book. I fangirl both Gates and Obama.
I was not far into the book when I decided to try out one of the suggestions for how to draw people out when I found myself at a dinner table with The Art Professor and two former child psychiatrists---one is my neighbor who I've nicknamed Robbie's Mom because of her dog. The other psychiatrist at the table I've never written about so let's call her Sarah, which may or may not be her real name. I tried on the nicknames The Caregiver, Liberal Lucy and Sam's Wife (since I know him better than her, having spent six hours teaching him how to play mahjong and having played with him every Wednesday since March). But she is more than all those nicknames as are all my fellow residents who I've given nicknames to.
Anyway, I'm getting off track here. When it came time to ask each other what we did that day (which is always par for the course around here at dinner tables) Sarah shared that she'd taken her husband to the dentist and I replied, "That must have been exhausting." "It was!" she replied and the Art Professor looked confused. "Why was it exhausting?" she asked. Sam is a big guy and Sarah's petite and he's confined to an electric wheelchair and has to transfer in and out of a manual, transport chair for outings. Long story slightly shorter we got into a discussion about how going to public places you never know how steep the incline ramps are or how disability friendly the parking lots and restrooms will be, not to mention pushing a big guy in a chair is hard physically. And Sarah said, "It takes three people to get him out of his transport chair and into the dentist's chair." Then she turned to me and said, "Thank you so much for giving me the opportunity to vent!" Wow, I thought, the book suggestions actually work!
The Art Professor then spoke up to ask how can friends and the community help family caregivers? Sarah hemmed and hawed but didn't say anything so I jumped with, "Time," I suggested. "Offer to sit with a disabled spouse so the caregiver can have a few hours to run an errand or two."
"I had a friend with a disabled husband, "The Art Professor replied, "and she always turned me down when I offered. I guess she didn't really need a break."
"Well, sometimes you worry all the time you're gone from your disabled spouse," I tried to explain, "and it's not always as enjoyable as one might think."
"Worry about what?"
"About what could go wrong. Bathroom issues. Falls. My husband, for example, had swallowing issues," I said, "and could choke to death if he wasn't watched like a hawk." And here's where I was rendered speechless.
"That could be a good thing. It would speed up the dying process and end a caregiver role."
So much for empathy! So much for The Art Professor not noticing that I dropped out of the conversation and was boiling over with ambivalent thoughts. I wanted to both rage at the coldness of her careless and/or callous statement and at the same time I wanted to use it as a teaching moment that might embarrass the crap out of her---and tit-for-tat me would have been happy if it did. It's three days later as I write this and I STILL want to tell The Art Professor that choking on some potato chips a friend let my husband have off his plate was ultimately what killed him. Even though a nurse happened to be close by at the restaurant and preformed the Heimlich to save him that day he unbeknownst had ingested potato chips into his lungs where they caused a fungi to grow and by the time he was hospitalized weeks later it was too late. The fungi had taken over and he died 10-15 minutes after being taken off life support. Yup, choking on his food DID "speed up his dying process" but it was by no means a good thing for me or for him.
That conversation was the only social experiment I did based on David Brook's book but it probably won't be my last. However it will be a while before I strike out again to teach myself to connect with others on a deeper level. Quoting this author: "There is one skill that lies at the heart of any healthy person, family, school, community organization, or society: the ability to see someone else deeply and make them feel seen—to accurately know another person, to let them feel valued, heard, and understood. And yet we humans don’t do this well. All around us are people who feel invisible, unseen, misunderstood." In the course of this one dinner I felt both empowered by helping one of my neighbors be seen but I left that dinner table feeling invisible and if I wasn't a blogger I don't know where I would have dumped the pain and guilt that bubbled back up regarding the way in which Don died. ©



