Preparing for Zepbound Like It’s a Baby Shower

 

In this post, Jean chronicles a week filled with medical busy work, sleep apnea victories, and the long, bureaucratic march toward starting GLP‑1 treatment. With her trademark humor and sharp observations, she turns frustration into storytelling — and even finds room for a cameo from “Dr. Cutie Pie,” her ever-charming sleep specialist. ...AL

 

It was one of those weeks where every waking moment felt devoted to either busy work or maintaining my body like it’s a vintage car that requires constant tinkering. Friday afternoon was a prime example: I spent 17 minutes and 12 seconds on hold just to report that yes, I did keep my follow-up appointment with my sleep doctor. This was in response to the medical supply company's strongly worded letter warning me that if I failed to show up — or failed to call to confirm I had shown up — insurance would not cover this very expensive odyssey I’ve been on since last December.

I was actually excited to keep that appointment, and not just because Dr. Cutie Pie looks like he wandered off the set of a medical drama where he plays the heart-throb who keeps millions of women and gay men tuning in each week. He’s also genuinely nice and extremely thorough. I wanted to tell him that except for the fact that my face looks like a relief road map every morning, I’m doing really well.

And wouldn’t you know — he has a “cure” for the puffy-face-with-ruts look. Witch hazel wipes. Not the fancy expensive, cosmetic-counter potions I’ve been trying. Witch hazel. I could have kissed him, but I didn’t want to smudge his imaginary TV makeup.

The good news is that treating my sleep apnea and hypoxemia has already changed my life. My morning bed no longer looks like I’ve been wrestling alligators all night. And I don’t dread going to bed, especially after learning at the sleep lab that I was quitting breathing 64 times an hour. Now, with my BiPap machine and my pseudo-astronaut headgear, I only stop breathing 1.5 to 2 times an hour — and when that happens, the Bi-in-the-Pap yanks the breath right out of my lungs and puts another one in like a tiny, bossy life coach yelling, “Breathe, damn it, BREATHE!”.

I’ve been 100% compliant with the machine, which is extremely important if you don’t want Medicare to stop paying for supplies then send you a bill for $1,000 if you don’t return the machine ASAP. And how would they know if you’re using it...or if you’ve strapped it to your dog? Oh, they know. The machine has its own Wi-Fi and sends a daily report to Medicare: how many hours you were hooked up, how often you took off the mask to pee, raid the refrigerator, or — in the case of my youngest niece — go sleepwalking down a flight of stairs. (She’s just beginning her own sleep apnea diagnosis journey.)

Back to that phone call: after my 17-minute hold time, I finally talked to someone, then left my apartment — and my phone — to go to lunch. When I got back, there was a voicemail from the same person asking me to call back Monday because they “need more information.” Busy work. Waiting around for a medical supply company to data-mine my brain may not technically fit the definition of busy work, but it sure feels like a stupid waste of time. They've called me four days in a row, now. Why can’t people do their job right the first time?

Speaking of which, here’s another example. Over a month ago, my Nurse Practitioner started the process to get me on the GLP‑1 drug Zepbound for weight loss. First she sent the prescription to my short-term pharmacy instead of my mail-order pharmacy. Then she forgot to include dosing instructions. Then I had to go through Prior Authorization, which is basically the insurance company looking for a reason to deny the drug. This back-and-forth took place through texts and MyChart messages and still isn’t over. But OptumRX assured me that one phone call from the NP is the last hurdle, and they’ve sent her two faxes. I sent her one message. We waited. Then they canceled the prescription when they didn't hear back from her. More calls and text messages and finally everyone is on the same page and the prescription is being filled as I write.

Since I’ve had a month to prepare, I’ve been nesting for this medication like a woman setting up a nursery. I bought the hardcover “bible” on GLP‑1 to learn how to get the best results and manage side effects. It’s not a miracle drug, not a quick or easy fix — I’ll still have to track my food — but the strange part is that everyone on the support sites say they track their food to make sure they’re getting enough calories, protein, and water. Every other diet I’ve ever been on required tracking to make sure I didn’t overeat. The drug stops the ‘food noise’ that goes on inside your head. If you experience it, you’ll understand what that term means. GLP-1 a natural hormone that our bodies product that tells us when you’re full and apparently on GLP-1 we listen.

I also bought a tracking journal specifically for GLP‑1 users. If you’re smart and you want good data to show your doctor so you can keep on the drug you should record everything: injection sites, calories, protein, water, side effects, and what goes out of your body — by mouth or… you know where. Like pregnant women who vomit at the smell of certain foods, some people on GLP‑1s do the same. So my pantry is stocked with ginger gummies and ginger tea. I’ve got high-protein snacks and shakes because apparently protein is key and they don’t mean red meat.

Just doubling my protein and staying under a 500 calorie deficit a day from what my body weight requires in preparation for this big adventure helped me lose six pounds in eleven days. Hopefully, when I finally get to do my first injection, I won’t be projectile vomiting. But if I stick with the program, I’ll get to see Dr. Cutie Pie sooner than my one-year follow-up because all my sleep apnea settings will need to be recalibrated. He’s confident I’m a rule follower and will do well on Zepbound. Did I mention he’s also a psychiatrist as well has a sleep specialist? He’s says there’s a lot of overlap regarding why we have sleep issues.

Surviving in today’s medical community requires equal parts patience, paperwork, and circus‑level flexibility. But if it gets me better sleep, a healthier body, and another appointment with Dr. Cutie Pie, then I’ll deal with feeling like I’m living in a full‑blown medical montage. All I’m missing is a soundtrack and a slow‑motion shot of me bravely opening the Zepbound box — when it finally gets here. Fingers crossed. ©

See you next Wednesday.