Navigating the healthcare system can feel like a full‑time job, especially when long‑ignored symptoms finally get the attention they deserve. This post chronicles Jean’s journey through a growing lineup of medical specialists, a parade of diagnoses, and a few treatments she never imagined discussing with doctors half her age. With humor and honesty, she explores the strange, hopeful path toward a full night’s sleep. It’s a story about persistence, aging with grit, and the small victories that make the whole medical circus feel worth it. AI….
The past few months I have accumulated a few new doctors—specialists, because apparently our bodies are too complicated for one doctor to learn it all from the tops of our heads to our toes. I now have an ears, nose and throat doctor, a sleep specialist, an urogynecologist, and a gastroenterologist. I shouldn’t complain, because it wasn’t long ago that I didn’t feel like anyone in the medical field was taking me seriously. My internist has been my primary care doctor for 20 years and if I’d been in the medical field as long as he’s been I’d be tired of listening to people complain all day long about stuff that we’ve probably brought on ourselves. “You broke your toe? It’s those extra pounds you’re carrying around.” “You have a hang nail? Loss some weight.” He’s not really that bad, but between the two of us there’s been no follow-through with things like my stage three kidney disease and the lack of sleep I’ve been complaining about for five years. I only see him once a year, so you do the math—I’ve complained five times.
The recent turnaround happened during a visit to my primary care’s PA for a UTI—a young woman who actually listened and immediately sent referrals to both a sleep specialist (with a sub-specialty in general psychiatry) and a urogynecologist. I can’t get in to see the latter until April, but I’ve already seen the sleep doctor, who sent me to an ear, nose and throat doctor, who is now sending me to a gastroenterologist—also booked until nearly April. The end of January I’m set up to do an in-home sleep study to see if I have sleep apnea.
The Sleep Doctor suspected I have silent acid reflux and the ear, nose and throat doctor confirmed it. The gastroenterologist appointment is to see what is causing it. Silent acid reflux can wake you up at night. The Sleep doctor’s diagnosed was partly based on the fact that I wake up sometimes moving my lips like I’m blowing bubbles. He also prescribed a sleeping pill with the side effect of making a patient hold their urine—which, in my case, is a welcome side effect. Since I started taking that, some pills for acid reflux, and using the below mentioned cream I’m only getting up 3 to 5 times a night instead of 7 to 10.
And since most of my readers are women, I’ll mention the most astonishing treatment for nighttime over‑urination: vaginal estrogen cream! When the young PA mentioned it and put me on it, I couldn’t believe it was a real thing until I got home and Dr. Google confirmed that it’s a common treatment for night time urination. Apparently we get “thin” up there (or down there—take your pick), and the cream helps “restore the health of the tissues, which become thin, dry, and less elastic due to declining natural estrogen levels after menopause.” That wall is close to our bladder and it puts pressure on it. But imagine my embarrassment when my new, very young, cuter-than-Tom-Cruise Sleep Doctor explaining how vaginal estrogen cream can help me get a better night’s sleep. When I checked the MyChart app a few weeks later, I looked at the notes he wrote and I discovered ten pages of my medical history—going all the way back to my tonsils being removed at three months old! AI must have been working overtime to compile our complete histories all in one place. I was shocked.
On New Year’s Eve I had two glasses of champagne, slept for ten hours without a sleeping pill, and only got up once during the night. How’s that for a heavenly way to start out a new year after dealing with this issue for at least five years. But in case you haven’t figured it out, my next few months are going to be consumed with a hit‑it‑from‑all‑fronts campaign to get me sleeping like that every night—without the champagne. I have a spreadsheet to track my sleep, weight, blood pressure, bowel movements, nighttime urinations, what I drink, when I eat and what combination of sleep meds I’m taking and at what time. He wants me to cut down on over-the-counter Melatonin. And reading my history reminded me that back when I broke my ribs, a doctor who came to see me in Assisted Living told me that if I took an hour every afternoon to lie down with my legs higher than my heart, it would help cut down on how often I get up at night to pee. So I’ve been doing that again while enjoy old West Wing episodes on Netflix. It’s the strangest New Year’s resolution I’ve ever written—working on my sleep issues—but I’m hopeful it’s a resolution I can achieve.
New topic: Our New Year’s Eve celebration here in the CCC started at 5:00 with a plated dinner, a slide show of all our 2025 events and ended at 8:30 with a ball drop. Yup, I know—that’s crazy. Six of us did extend the official party until 10:30 by playing cards, and all but the white snowflake headband pictured up above were won in that card game. The white headband I wore to the party. Everyone else here recycles their old holiday sweaters but I never wore them during my work-for-a-living days, so since moving here I've accumulated dollar store headbands for each of the holidays.
Below are photos of our plated dinner—all but the first course, which was a roasted beet arancini with a goat-cheese cream sauce. I thought the chefs made up the word “arancini,” but it’s actually a traditional Sicilian fried rice ball, and it was yummy—as were all five courses that followed. ©
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Our third course was a pan seared sea bass with roasted red pepper, lemon coulis, wilted greens and vegetable blend. Everyone was looking for a four-leafed clover during this course.
Our forth course was mango sorbet in champagne. "A palate cleaner." It was really good!
Our fifth course was grilled lamb chops with mint pesto marinate, pomegranate, balsamic sauce, lemon rice pilaf, and blistered tomatoes. I don't normally eat baby lamb or baby beef but I have to admit this very good.
I dove into eating our sixth course before I snapped this photo. It was a chocolate lava cake with peppermint stick ice cream and chocolate sauce. Our
chefs do a wonderful job with plated meals which they only do twice a
year. This one cost $30, a five dollar increase since the last one.
(I apologize for the poor quality of the photos. I have a new phone and while that's a handy excuse, the truth is I got in a hurry and didn't notice how "yellow" those white plates turned out before I posted the photos. By then it was too late to edit them and still make my dateline for posting.)
Post Script: Related to not sleeping well is Dry Mouth which comes from sleeping with your mouth open. I found a product that helps with that, a tablet that sticks to your gum, above your teeth, and it lasts about five hours. I find my tongue touching it when my mouth needs moisture and I can go back to sleep without getting up to rinse my mouth with water.
