“Not in Assisted Living (Yet): Dispatches from the Edge of Independence!

Welcome to my World---Woman, widow, senior citizen seeking to live out my days with a sense of whimsy as I search for inner peace and friendships. Jeez, that sounds like a profile on a dating app and I have zero interest in them, having lost my soul mate of 42 years. Life was good until it wasn't when my husband had a massive stroke and I spent the next 12 1/2 years as his caregiver. This blog has documented the pain and heartache of loss, my dark humor, my sweetest memories and, yes, even my pity parties and finally, moving past it all. And now I’m ready for a new start, in a new location---a continuum care campus in West Michigan, U.S.A. Some people say I have a quirky sense of humor that shows up from time to time in this blog. Others say I make some keen observations about life and growing older. Stick around, read a while. I'm sure we'll have things in common. Your comments are welcome and encouraged. Jean

Wednesday, January 7, 2026

The Great Sleep Campaign of 2026

Navigating the healthcare system can feel like a full‑time job, especially when long‑ignored symptoms finally get the attention they deserve. This post chronicles Jean’s journey through a growing lineup of medical specialists, a parade of diagnoses, and a few treatments she never imagined discussing with doctors half her age. With humor and honesty, she explores the strange, hopeful path toward a full night’s sleep. It’s a story about persistence, aging with grit, and the small victories that make the whole medical circus feel worth it.  AI….

The past few months I have accumulated a few new doctors—specialists, because apparently our bodies are too complicated for one doctor to learn it all from the tops of our heads to our toes. I now have an ears, nose and throat doctor, a sleep specialist, an urogynecologist, and a gastroenterologist. I shouldn’t complain, because it wasn’t long ago that I didn’t feel like anyone in the medical field was taking me seriously. My internist has been my primary care doctor for 20 years and if I’d been in the medical field as long as he’s been I’d be tired of listening to people complain all day long about stuff that we’ve probably brought on ourselves. “You broke your toe? It’s those extra pounds you’re carrying around.” “You have a hang nail? Loss some weight.” He’s not really that bad, but between the two of us there’s been no follow-through with things like my stage three kidney disease and the lack of sleep I’ve been complaining about for five years. I only see him once a year, so you do the math—I’ve complained five times.

The recent turnaround happened during a visit to my primary care’s PA for a UTI—a young woman who actually listened and immediately sent referrals to both a sleep specialist (with a sub-specialty in general psychiatry) and a urogynecologist. I can’t get in to see the latter until April, but I’ve already seen the sleep doctor, who sent me to an ear, nose and throat doctor, who is now sending me to a gastroenterologist—also booked until nearly April. The end of January I’m set up to do an in-home sleep study to see if I have sleep apnea. 

The Sleep Doctor suspected I have silent acid reflux and the ear, nose and throat doctor confirmed it. The gastroenterologist appointment is to see what is causing it. Silent acid reflux can wake you up at night. The Sleep doctor’s diagnosed was partly based on the fact that I wake up sometimes moving my lips like I’m blowing bubbles. He also prescribed a sleeping pill with the side effect of making a patient hold their urine—which, in my case, is a welcome side effect. Since I started taking that, some pills for acid reflux, and using the below mentioned cream I’m only getting up 3 to 5 times a night instead of 7 to 10.

And since most of my readers are women, I’ll mention the most astonishing treatment for nighttime over‑urination: vaginal estrogen cream! When the young PA mentioned it and put me on it, I couldn’t believe it was a real thing until I got home and Dr. Google confirmed that it’s a common treatment for night time urination. Apparently we get “thin” up there (or down there—take your pick), and the cream helps “restore the health of the tissues, which become thin, dry, and less elastic due to declining natural estrogen levels after menopause.” That wall is close to our bladder and it puts pressure on it. But imagine my embarrassment when my new, very young, cuter-than-Tom-Cruise Sleep Doctor explaining how vaginal estrogen cream can help me get a better night’s sleep. When I checked the MyChart app a few weeks later, I looked at the notes he wrote and I discovered ten pages of my medical history—going all the way back to my tonsils being removed at three months old! AI must have been working overtime to compile our complete histories all in one place. I was shocked. 

On New Year’s Eve I had two glasses of champagne, slept for ten hours without a sleeping pill, and only got up once during the night. How’s that for a heavenly way to start out a new year after dealing with this issue for at least five years. But in case you haven’t figured it out, my next few months are going to be consumed with a hit‑it‑from‑all‑fronts campaign to get me sleeping like that every night—without the champagne. I have a spreadsheet to track my sleep, weight, blood pressure, bowel movements, nighttime urinations, what I drink, when I eat and what combination of sleep meds I’m taking and at what time. He wants me to cut down on over-the-counter Melatonin. And reading my history reminded me that back when I broke my ribs, a doctor who came to see me in Assisted Living told me that if I took an hour every afternoon to lie down with my legs higher than my heart, it would help cut down on how often I get up at night to pee. So I’ve been doing that again while enjoy old West Wing episodes on Netflix. It’s the strangest New Year’s resolution I’ve ever written—working on my sleep issues—but I’m hopeful it’s a resolution I can achieve.

New topic: Our New Year’s Eve celebration here in the CCC started at 5:00 with a plated dinner, a slide show of all our 2025 events and ended at 8:30 with a ball drop. Yup, I know—that’s crazy. Six of us did extend the official party until 10:30 by playing cards, and all but the white snowflake headband pictured up above were won in that card game. The white headband I wore to the party. Everyone else here recycles their old holiday sweaters but I never wore them during my work-for-a-living days, so since moving here I've accumulated dollar store headbands for each of the holidays. 

Below are photos of our plated dinner—all but the first course, which was a roasted beet arancini with a goat-cheese cream sauce. I thought the chefs made up the word “arancini,” but it’s actually a traditional Sicilian fried rice ball, and it was yummy—as were all five courses that followed.  ©



Our second course was a pear-endive salad of port poached pears, braised endive gorgonzota, toasted walnuts, lemon shallot vinaigrette.



Our third course was a pan seared sea bass with roasted red pepper, lemon coulis, wilted greens and vegetable blend. Everyone was looking for a four-leafed clover during this course.

 


Our forth course was mango sorbet in champagne. "A palate cleaner." It was really good!

 


Our fifth course was grilled lamb chops with mint pesto marinate, pomegranate, balsamic sauce, lemon rice pilaf, and blistered tomatoes. I don't normally eat baby lamb or baby beef but I have to admit this very good.

 


I dove into eating our sixth course before I snapped this photo. It was a chocolate lava cake with peppermint stick ice cream and chocolate sauce. 
Our chefs do a wonderful job with plated meals which they only do twice a year. This one cost $30, a five dollar increase since the last one.  

(I apologize for the poor quality of the photos. I have a new phone and while that's a handy excuse, the truth is I got in a hurry and didn't notice how "yellow" those white plates turned out before I posted the photos. By then it was too late to edit them and still make my dateline for posting.) 

Post Script:  Related to not sleeping well is Dry Mouth which comes from sleeping with your mouth open. I found a product that helps with that, a tablet that sticks to your gum, above your teeth, and it lasts about five hours. I find my tongue touching it when my mouth needs moisture and I can go back to sleep without getting up to rinse my mouth with water.

 


 

28 comments:

  1. You have hit on a topic that plagues many of us as we age. I too suffer with sleep issues, frequent trips to the bathroom (barely making it sometimes), dry mouth etc. Sounds like you have addressed your issues and have found someone who will listen to you. Sometimes I am guilty of not taking care of myself with all that is going on in my life but if I don’t do it who will? Listening to our bodies is important and I thank you for reminding me of that and I may just have to reevaluate my New Year’s resolutions and put taking care of me at the top! JJ

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    1. Here it is 1:15 and I can't sleep again, after having a few good nights. Turning off my brain is SO hard. So many factors enter in to sleeping well is it any wonder we can't get them all working at the same time. I can't blame it all on my primary for not taking me more serious, I kind of accepted it as part of getting old and didn't press as hard as I should for answers as to why I'm getting up so often and he did ask me if I'd ever done a sleep study and I told him back then I didn't want one, not knowing that they now have an at home version you can do. I had to go with Don when he had one and I couldn't imagine getting all hooked up and having to pee and have them come in to unhook me every couple of hours. Although I'm doing better on the front now with the estrogen cream. I still find that amazingly queer.

      With you being a caregiver for your husband and active in your church, I'm sure you're put him and everyone else first, so I hope you do move yourself up the list of those you give your time to. You know the saying, "you can't care for someone else if you don't take care of yourself."

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  2. I'm glad you seem to be getting good health care, but sorry you need it. Take care! ❤️

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  3. I hear you on the multi-doc thing. I like that, feel comforted by it -- but sometimes I think my various docs know more about me than my PC and don't always share. (My specialists are lung, cardio, ENT, and infectious disease). I so miss my doc of 30 years who knew me inside and out (no pun intended) and could navigate well between the specialists. My new one is young -- which is good in many ways -- but not quite so familiar with the system, I think, or the people. I think a lot of us have the nighttime bathroom visits, so that was an interesting point -- both the cream and the legs up. In any event, I hope they all end up well. I've been going through a streak of waking up with multi-hour bronchospasms at about 4 a.m. and believe me, I get the short of sleep thing. I didn't expect the "now" to be so challenging.

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    1. I like my list of specialist better than yours! That's some serious stuff you're dealing with. I have mixed feeling about young doctors. What I miss the most is not needing to go to any of them, but we're not in your 20 and 30s anymore.

      The legs up things is suppose to be good for heart issues as well as getting up too often to pee.

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    2. A couple years ago I had a skin cancer on my lower leg removed by Mohs surgery. The doctor put me on an antibiotic because he said our legs are like "pillars of water" in that the return circulation to the heart depends mainly on the muscles squeezing the veins. I probably didn't need it because I walk every day for a half hour (now with my new Chiweenie dog) but I thought that was an interesting way to explain it.

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    3. That mirrors what the doctor told me in assisted living. I've never heard of a Chiweenie but I just google them. What cutie-pies!

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  4. That meal looks amazing -- and what a great deal pricewise! That would cost a fortune in a restaurant. :-)
    An at home sleep test sounds better than the one I did. It was in a hospital like room with about 100 wires attached to me. Amazingly, I was able to fall asleep but I was pretty happy to get home to my own bed.
    And yes to the estrogen cream. My OB/GYN also talked about how it helps UTIs, etc, as we age. This is my week for dermatology visits and prescriptions. I feel like aging is death by a thousand cuts. And I'm trying to get off the sugar train from the holiday. Uufff.

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    1. We have good chefs here but they serve too many specials that are carbs and sauce heavy. Everyone here says they've gained 10 pounds since moving in.

      That's the kind of sleep test my husband had and I had to "sleep" in an adjoining room and didn't sleep at all due to them running in and out to hook him up and unhook him.

      Wow, I love that the estrogen will also help with UTIs since I manage to get one every year.

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  5. Holey moley, that is some 5-star dining right there! I probably would have had the opposite problem and be up frequently after a meal like that...LOL. Seriously though, I am glad you got a wonderful night's sleep and are getting this issue looked into by the experts. Sounds like you are getting some good care from people who actually listen (finally) and I hope it brings equally good results, Jean.

    Deb

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    1. I never pass up their plated dinners even though most of the time I have look up the menu online to see what we'll be eating. They are elegant affairs that just plan make you feel good.

      I hope I can get to the bottom of my sleep issues. I'm getting up less often but having trouble falling asleep now.

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  6. I found a product that does what you are looking for as well. Silky Peach. It addresses all those fun female issues. https://www.parlor-games.com/shop/

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  7. Yeah for the PA who didn't ignore the older woman and solutions so far. I had to switch doctors as the first one under our new plan was condescending and dismissive. He wasn't to my equally old husband though.

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    1. Male doctors have a reputation for being dismissive to women, think we complain too much. I suppose, for some people, it would be hard to put their personal prejudices aside and treat all people with the same care.

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  8. Gosh it seems I am following in your footsteps ... sleep is not as easy any more. Do tell the med for sleep/hold urine. I have been taking trospium chloride (for overactive bladder) 2x/day and that cut my night time visits to 1-2 times. And Estradiol cream was prescribed for balancing hormones. 2x/week. Who knew it also helps with sleep! Kinda messy but worth it. I also have lichen sclerosis (which causes thinning of skin in the down under) and use a Clobetasol cream a few times a week. Last but best, I take Methenamine Hippurate to ward off UTIs and I haven't had one since I started two years ago (knock on wood).

    Now, for the good stuff! I love your tiaras! I broke down and got reindeer antlers this Christmas. And the NYE dinner?!! Amazing and looks as delicious as it sounds. A $199 dinner for sure. YUM! Living at a CCC sounds just perfect.

    I'm glad you brought up all this lady issues. I learn something every time I read your blog. This one will especially help your female readers know that there is relief for some/most issues! Do not suffer alone.

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    1. I have lichen sclerosis too---for about 11 years now. I switched to Clobetasol ointment because I read that the cream has alcohol in it which can be drying and possibly irritating.

      I had pretty much "self-diagnosed" by Googling the symptoms. The nurse practitioner who saw me initially had never seen a patient with it, but she looked it up and concurred with me. The biopsy later proved me correct too. Thank you, Dr. Google!

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    2. I never thought I'd be looking forward to an exam of my female parts, I am.

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  9. I was on trospium for 8 weeks and it didn't help me one little bit. It's one of the reasons I didn't follow up with my doctor. I didn't know there were others i could try. Another one made my mouth swell up and I had to quit taking it. Doxepin is what I'm taking now in place of Ambiem but it takes longer to kick in at night so I'm not 100% sure I'm going to stay on it. And it's hard to say whether it's the meds I'm now on for silent acid reflux, the doxepin or the estrogen that is causing me not to get up so much to pee. I'm going to wait until I see the urogyno before I try any OTC to prevent UTI. In the meantime I'm drinking and eating more cranberries.

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  10. Hope you find the solutions to your sleep troubles. Sounds like you are on the right track. I've been sick with the flu since 12/28 and still not over it. I had the flu shot but it must have missed this strain. I've been put on several prescriptions and so am finally starting to feel a bit better. The cough is the worst and it's 24/7 and makes it difficult to sleep. Not a good way to start 2026!

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    1. People here are reporting the same thing....a flu that last a long time. Hope you are on the mend.

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  11. Fascinated by the medical report; from a famine to a feast, eh? But what is amazing is the plated dinner. I got hungry just reading the menu, and the photos are good enough to tell the story well. You have a good place there, for sure.

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  12. My problem was I started having very minor urine leaking so my doctor put me on estrogen cream also and it made a huge difference. I use it twice a week and I haven’t had the problem since. Also, I have not had a UTI since I started using the cream. Since I’ve never had cancer, I’m using the estradiol.
    Now I sleep good, but I often have a glass of wine and most nights I take a half a Xanax the lowest dose. What it really does is turn my mind off so I can fall asleep, as it is not a sleeping pill. But it works better than any sleeping pill I’ve ever tried and I’ve been taking Xanax off and on for 30 years and I’ve never taken more than a half of the lowest dose. For me, it’s a miracle drug.

    I’ve just recently gone to a cardiologist because I do have some heart issues that don’t currently appear to be bothering me, but I hadn’t seen a cardiologist in years, so I wanted just to have some things checked out. My primary really does nothing. They do blood work and listen to your heart and take your blood pressure. But it’s not like it used to be when they did some tests, like a urinalysis an EKG, feeling your stomach and things like that. Really it’s just a wellness check and you’re better off going to specialist. I loved the cardiologist and felt much better after I saw him. And I’ve done bloodwork and an EKG. And now I’m set for an Echo and an ultrasound of my carotid artery.

    I think it’s your age. It’s better to have specialists even if you pay a higher co-pay.
    Mary

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    1. I'm loving what I'm hearing about the estrogen cream.

      Turning off my mind so I can fall asleep is something that bothers me too so I will ask my sleep doctor about the Xanax instead of sleeping pills. Doctors don't want elderly people like me on any sleep meds, but not getting any sleep is not good for you either.

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  13. I think I might look forward to your fancy plated dinners as much as you do! I think they are spectacular and find the price very reasonable for that amazing food. Not something you would eat every night - but for special occasions it is perfect!
    How wonderful that a medical professional took your "complaints" seriously! It is hard to wait on appointments, but I am looking forward to what they come up with. It sounds like some great ideas and treatments already!!!

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    1. Our plated dinners also come with extra table decor and lots of wait staff. The place looks great. Like you said, I wouldn't want to do it every day but it makes you feel good to dress a little better for those dinners and be treated so well.

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